15 month appointment – just a few updates

On Friday, Finley had her 15 month well-child appointment. She is up to 20lbs 7.5 ounces – 10th percentile, but Dr S is not worried. With the increase in activity, and not an increase in appetite, this often happens but usually they catch back up in a few more months. It’s interesting because if you look at her, she doesn’t seem like a super skinny baby. She has chubby cheeks,  a tummy, and some fat rolls. I may have to throw a party when we finally hit 21 pounds. I will continue to try to fatten her up with good fats, and not stress too much about it.  Early Intervention also came last week and she is right on track in all areas.

She has been taking a few steps for the last few weeks but not walking consistently. The most we had seen was about 4 steps and then last night at Jon’s birthday dinner at Swagat (our favorite Indian restaurant in Beaverton) she decides to show off for the table and walked the length of the table (maybe 20+ steps), pausing only to applaud her self (and let the table clap for her) and continue along. It was the cutest thing and just made my heart sing. As I see her meeting milestones and not being delayed at all, I am once again, humbled and filled with gratitude for where Finley is at.

A news Anchor in NY had a baby with CDH and is sharing her story – Amazing Grace.   Love seeing awareness being spread!

Baby Dedication

Finley’s Baby Dedication is this Sunday at 9AM at Grace Chapel…  I am so excited for this day to come.

For those of you that are wondering what is a Baby Dedication? (I borrowed this explanation from Real Life Church).

“Baby Dedication is an opportunity to publicly…
Thank God for the amazing and precious gift of your child.
Declare your intentions to raise your child in a Christian home.
A benchmark you can return to time and time again.
A family dedication, where the parents commit themselves to follow biblical principles and to raise their children according to God’s best.
Not only are you dedicating your child to God, you are dedicating yourselves, as parents, to Christ and the church.

What About Baptism?
Baby Dedication does not involve baptism. We believe that baptism is meant to take place at a time when an individual makes a personal decision to follow Christ and is old enough to repent of sin and confess Jesus publicly. Some people think that if a child dies before being baptized he will not go to heaven. We have confidence in a loving God who welcomes the little children. Jesus said, “Let the little children come to me, and do not hinder them; for the kingdom of heaven belongs to such as these…” (Matthew 19:14 NIV).”

We are so excited to share this event with our friends and family that can attend. To thank God for Finley. To thank our friends and church family at Grace for praying so earnestly for her. I appreciate everyone who has walked with us through this journey so much.

Finley had a great 9 month check up with her Pediatrician. Still on track and hanging out in the 50th percentile for weight and on track developmentally. She is getting stronger and stronger every day. She has started doing “pull ups” on the bar in her chair. It is funny to watch. No crawling yet.  As a mother of 2 I am actually ok with that. I know it will come and when it does – more baby proofing will be in order.

We got the call about scheduling her next ultrasound for June 24th.. I am just praying with all my heart that this time the bile duct will have shrunk and that there is no cyst in there.  No reherniation  and no Choledochal cyst.  My bold prayers. I just don’t want her to have to go through any more surgeries. If it comes to that, I know it will be ok- but I am going to pray for intercession that it won’t come to that.  I have seen God do amazing things in this last year. Not just in our lives. That has been such a gift to pray for other families and see how God has responded and worked in other peoples lives as well.  I am not worried about the “alleged” cyst. I think about it from time to time and I pray. I shared this verse with a friend yesterday and it is one of my favorites;

“Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” Matthew 6:34

4 month well child appointment (one week early)

Miss Finley

We had our 4 month well baby check today and got a DTP vaccine and her Synagis vaccine.  Her pediatrician is very happy with how well she is doing developmentally as she is already doing most of the 4 month items and even some 5 month things. I keep hearing “if I didn’t know already what she had been through, I just wouldn’t believe it.” How that makes my heart burst. She weighed in at 12lbs, 12.5 ounces and 24 3/4 in long.  She is just a little bit below 50% for weight and solidly in the 50% percentile for height and head. The Dr is happy with her growth. I feel like we won the lottery that she is doing so amazingly well.

It feels like we left the NICU a lifetime ago even though it only has been about 2 months. After the appointment, I was thinking about the day the doctor was trying to tell me we were running out of options if she didn’t respond to the Viagra and how ECMO might be off the table soon and how he was trying to tell me that things didn’t look great and look at where we are now. I am so thankful. Is rejoiceful a word? 🙂

Philippians 4:4 Rejoice in the Lord always. I will say it again: Rejoice!