Prayer requests for Thursday

I am actually oddly calm. So someone must be praying for me. If you would pray for sweet Finley and her tests on Thursday, here is my specific list of petitions and requests.

1. Healthy kidneys. No signs of Wilm’s tumor or any other kidney abnormalities,

2. Normal reproductive system for a female.

3. No signs of reherniation and an intact gortex patch repair.

4. Healthy bile duct and no evidence of a cholodochal cyst. (Let’s just say we ask for her to be completely healthy and have normal results on all her tests!)

5. For peace and calm for Finley (and her parents) and that God would continued to be glorified in her and our lives.

There is a part of me that feels calm because I think God already answered these things when we prayed for her health over 3 years ago as she was growing inside me. But, since God asks us to bring all our worries and petitions to him – these would be considered worries – so bringing them right back. I would say my natural state would be worry if I were left to my own devices.

Tomorrow we meet with the Geneticist. I will most likely post again soon if he has anything interesting or concerning to add to the mix. Mostly, he will be the point person here on the west coast to manage the tests and monitoring of the new list of “things to watch out for.”

People always ask if Finley is ok now. It’s such a hard question to answer. Yes, she is ok today. But she has this long list of things that could still happen. But honestly, don’t we all? There are lots of things that can happen to us tomorrow. Today, this moment, is all we truly can be certain of. Tomorrow, the only thing I am certain of is Jesus. I will keep trusting him to get us through.


A second birthday and the birth of a race….

Sunday was a big day. Finley turned 2 years old. As I woke up at 4:45 AM to get ready for Ladybug Run for CDH Awareness I had a little time to reflect on what this day meant. It was such a powerful day on so many levels.  As I held Finley in my arms before I left for the morning, I once again went back to two years ago when I also got up very early to go to the hospital to be induced. I would be meeting Finley for the first time, not knowing if we would have minutes together, days, weeks, or years. The tears began running down my face because I am filled with such joy that I have been able to have 2 years with this amazing little girl. She is determined, feisty, so funny, so beautiful and I just know the Lord has special things in mind for her. He chose ME to be her mother. That is a honor I won’t take lightly.

The race was a HUGE success. I will write more about the race on my other blog soon. But some things I want to mention now. God was SO present. I got chills over and over when I think about how God made this happen. I know God planted this seed in my heart, and to have followed him and listened and only blessed me so. I didn’t know anything about creating a race. But that didn’t matter. God broke down EVERY barrier. Brought me people with wisdom and expertise, friends with contacts and heart to serve, donations, sponsors – everything fell into place. 237 adult registrants and 50+ kids. For a first year race – these are AMAZING numbers.

My dear friend Cody prayed before the race. She is such a powerful speaker – I was so blessed she agreed to do this for us. I was nervous how this would be recieved by everyone, as it is not standard practice to open a race in prayer – but it was important to me. She read from Romans 8 “37 No, in all these things we are more than conquerors through him who loved us. 38 For I am convinced that neither death nor life, neither angels nor demons,[k] neither the present nor the future, nor any powers, 39 neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.” I almost lost it completely it was so fitting for this day, for everything we have been through.  I got several comments from other CDH parents about how the day was healing for them, and lots of thank yous.  I am just so humbled and thankful to be able to serve. To use my gifts. I can’t wait to see where this all takes us.

To see all the people wearing Ladybug shirts, costumes, to see the day unfold after months (years actually) of planning – it was just incredible. Running with Finley in the Diaper Dash (though she didn’t actually want to go towards the finish line) was so sweet. It was a perfect day – even though MANY things didn’t go as planned. Somehow I was ok with it, because this day actually happened. This day that was just a seed planted not quite 2 years ago.. grew and grew and took on a life of it’s own… and God willing, it’s only going to get bigger.

Thank you again to everyone that has supported us over the past 2+ years.  Our prayer warriors have sustained us – you have prayed for miracles and we received them.

We love you all more than words can express.

an update in photos

I am horrible about uploading my camera sometimes… I found photos from December on this upload.

Finley is doing great… She is getting more verbal every day. She says; Hello, Bye, night-night, no-no (so cute right now, but I know it becomes less cute as they get older), YES!!! (usually with great enthusiasm), Ro-Ro, Octopus (what she says sounds very close, but also very funny), I do, apple (for some reason one of her favorites), num-nums (when she wants milk) and a few other things.

She also is obsessed with dancing and spinning. I will need to get it on video and upload. Let’s see how long that takes me.

And a shameless plug for the Ladybug Run… Have you registered?