She is holding pretty stable which is such a blessing! There have been some ups and downs (collapsed upper lobe of her right lung this morning due to blockage – but they already resolved that and it is inflated back up) but everyone seems to be very positive and encouraging about how she is doing for her second day after surgery. She has been down to as low as 35% oxygen and is tolerating being handled pretty well- which means her PH hasn’t come back with a vengeance post-surgery. The main concern has been her CO2 levels, which are now being managed well and are back down, so they may start trying to wean the vent back down so that we can try to get back to the conventional vent. The surgeon says that once she starts pooping again they will start introducing breast milk to her – which could be as soon as the next few days!
I know she is still a critically ill baby, but I feel like I can already see the light at the end of the tunnel – and even though I know we still have a long road ahead of us (they say we could still be here another month) I just feel God’s hand protecting us.
Thank you for all your continued prayers, support, and messages – we are so very thankful for everyone in our life and we just feel so blessed. And all those of you that don’t even know us, but have been holding up our family in prayer – I am humbled and moved. Thank you.
Finley is back on the high freq vent – slightly higher settings now to try and blow off her CO2 levels. Again, they say this is to be expected given the trauma of surgery and this was her problem from the very beginning. So it is natural that we start here again. Nurse Debbie last night said that since we got this under control last time, she would expect that as she settles in and begins to recover from surgery, this should subside again. So prayers for her to continue to stabilize and be able to eliminate her CO2 again. Pray for her body to recover from the shock of surgery and heal. Her right lung didn’t look “too good” on Xray this morning – which I think means it hasn’t expanded yet and started to work, but that can take some time as well.. So we wait.
4:47 PM UPDATE: Finley has had a pretty stable day and they are pleased with how she is doing post-op. They haven’t had to increase the vent settings any more and she is responding well – her CO2 levels are back in the 60s and her oxygen needs were even down to 38% for a while. I am hopeful that each hour, each day she just keeps getting better and maybe she’ll be able to get her first taste of breast milk in a few days.
I am overjoyed to announce that Finley’s surgery went really well! The surgeon was able to do it thorascopically and he said that Finley’s vital signs and numbers were really good throughout the surgery. God is AMAZING! God is good – We are sooooo happy!
The short version: She had stomach, intenstine and spleen up – but they moved down really easily. Her moderate sized hole was repaired with a plug. She had more lung hiding behind behind the organs – so she has a decent amount of lung!! He thinks she should have a easier recovery because of this, but of course gave the caveat that every baby is different and you can’t predict what they are going to do, but he felt very positive about the surgery and her recovery.
That’s all I have in me for now – I am in shock and overwhelmed with happiness that we have made it through this second LARGE hurdle. I know we still have a lot ahead of us, but I am going to rejoice in all the blessings of today. God has truly met us in this and I have felt God’s love and his promises throughout this journey so far and I know he will continue to be with us. Thank you for all your prayers – you got us through today. We feel so loved and protected.
UPDATE 10:50 PM – She is doing pretty well, but her CO2 levels are very high (120) so she may need to go back on the high freq vent for a little while. They say this is not unexpected… Hopefully it will be for a short term and in a few days we will be back on the regular…