A labor of love…

I was busy on Facebook this morning trying to recruit volunteers for the race and I typed this plea; ”

“This race is a labor of love for our family.. we need lots of volunteers to make it happen – can you help? Lots of things you can do even with a kiddo! http://signup.com/go/M3xRbL
Please share!
100% of the money raised goes to helping families in the NICU in the NW, and towards research. 100%. We are entirely volunteer led and run.

As I sat here thinking about those words, I thought about how Ladybug Run is a labor of love not just for our family, but for those that come along side and help us – year after year.. without the enticement of shirts, free entries, anything – but just for the feels, and the fact that they know that they are doing stuff that MATTERS. It matters to the CDH families we visit in the NICU who receive care packages with items from Breath of Hope and Ladybug CDH Foundation and gift cards that are purchased from the money raised at the race and through out the year. It matters because we have been able to donate over $80,000 to research to improve outcomes for kids the CDH and PH. It matters to the families who have lost their children who get to spend a day honoring, remembering, and celebrating their child’s life. It matters to the families whose child fought for days, weeks, months – and continues the battle even once they get released from the hospital.

This race is so much more than a run. Sure, people throw on their running shoes and run and walk 1-6.2 miles… but this race is so much more.
We need over 50+ people to cheer and direct traffic and protect our participants and cheer them on! We need face painters, and people to hand out medals, to cover bag check, and help with hospitality/food.. If you are running or walking, you can help stuff swag bags, help at packet pick up, or race day set up or registration.. we’ve got lots of needs. If you have any time/bandwidth, your help is much appreciated.
SIGN UP HERE TO HELP: http://signup.com/go/M3xRbL
(please share with friends/family and kind strangers.)

How is Finley?

Tomorrow will make it 2 weeks since Finley’s surgery. That doesn’t seem possible. She has been at school every day this week, each day she walks straighter and seems almost back to her normal self.

How is Finley? She’s doing amazing. I mean, she’s at school.. she’s playing, eating good (by Finley standards), she’s not on any pain meds, she really is doing amazingly well. She finished her 7 day course of the antibiotic for the incision infection on her stomach, and we have one more week of the other 2 antibiotics. The front incision looks a lot better, but still has some redness. The plan is to see if the redness gets worse off antibiotics, or keeps improving. The waiting game with infections hasn’t gone well for us in the past, so I am nervous that there could still be something lurking. The last 7+ months have been a roller coaster of waiting and the infection returning, so it’s hard to believe it’s all gone.  But, maybe, just maybe, this time it is…

They pulled the final drain that was in her back incision today. It hasn’t been draining much of anything since we’ve come home, so that’s a good sign. Dr Jafri was happy with how everything looked, and wants us back next week for one more follow up.

So we continue to cover sweet Finley in prayers. That there is no more infection in her body. That she continues to heal and recover from surgery and does not have any more infections to combat. I can’t wait for that day- we may have to throw a party!