Saturday game plan

Finley had a great night – meaning no huge surprises! Her breathing continues to improve, but we still need her to do the breathing exercises that encourage her lungs to open up and cough (and this is painful for her with the incisions). She is becoming more aware and less groggy… we are having more and more time with her eyes open and glimpses of her normal self slowly emerging. Her body has been through a lot in the last 24 hours but it is progressing really well. 

The plan is to remove her foley today, so we need her to be able to pee without it, or it goes back in. We need her stomach and bowels to wake up. They are going to allow her to try ice chips today when she is ready. She had some Tylenol orally last night which she promptly “returned.”  She has an epidural for pain management right now and may continue to have that until Monday as long as it holds in place. It is the best option for staying on top of the pain, so hopefully we don’t have to remove it early. 

Again, things are moving in the right direction. We are so thankful. 

“Praise God, who did not ignore my prayer or withdraw his unfailing love from me.”

‭‭Psalms‬ ‭66:20‬ ‭NLT‬‬

To him be the glory!

Praise God that everything we asked for, he provided!!

Rejoice with us! 
-the organs came off the patch with ease and minimal blood loss.

-there was enough diaphragm to do a primary close!!! This is such a huge answer to prayer. 

-she did great throughout surgery with no issues.

-the surgeon said it couldn’t have gone better!! 

Ephesians 3:20 “Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think.”
Prayer requests-
-for no post surgical complications.

-for all the infected tissue to be gone and continued protection against further infection.

-for her breathing… her diaphragm is having some issues waking up and her oxygenation keeps dropping… (but praises that she is breathing room air!)

-for an uneventful night in the PICU and that she will be able to go to Peds floor tomorrow AM. 

We have felt such a covering today. I can’t even thank you enough for going before and covering us in prayer.. we so appreciate every word uttered on Finley’s behalf!

Valley of the Shadow

Surgery time has been set. 11am on Friday.

Finley said she was scared on Sunday night about surgery… we prayed, and then I prayed a lot more for her. Then Monday I picked her up from school and as she overheard me tell a friend that I didn’t want to talk in front of her Finley says, “Mama, it’s ok now. You can talk in front of me. I don’t mind.” I ask her, “But I thought you were scared and didn’t want to talk about it.” To this she says, “I’m not afraid anymore.”

Huh? Was my reply. She tells me she locked her fear in a box, or rather a cave. I asked her to explain this, worrying that she is repressing her feelings.. and she tells me that she prayed and God took her fear and locked it in a dark cave.  It’s gone.

Our God is so good. To have the faith of a child. I have been wrestling with fear since this all began. It is an active process for me. A battle. For her, her faith is tells her God can just take it from her… and he does. For me, it is more of a daily process… it is continually pressing in to him as a reaction to those fearful feelings. I need him on IV right now.  I just reminded her, if the fear does come back – she can just give it back to God again – that’s just how it works.

Thursday, she will be on a clear diet for 24 hours, just jello, popsicles, and apple juice. Praying that she doesn’t notice any hunger pangs and we have a great, mellow day at home.

She still has a bit of an occasional cough, but no fever, Again, just praying if it’s God’s will for surgery this week, that this cough will go away entirely.

Psalm 23

The Lord is my shepherd; I shall not want.
2  He makes me lie down in green pastures.
He leads me beside still waters.
    He restores my soul.
He leads me in paths of righteousness
    for his name’s sake.

Even though I walk through the valley of the shadow of death,
    I will fear no evil,
for you are with me;
    your rod and your staff,
    they comfort me.

You prepare a table before me
    in the presence of my enemies;
you anoint my head with oil;
    my cup overflows.
Surely goodness and mercy shall follow me
    all the days of my life,
and I shall dwell in the house of the Lord

His will be done.

8 days to go

Unless we get a miracle, Finley will be having surgery in 8 days on May 26th.

The granuloma is actually even bigger than it was before. Thankfully, she is feeling mostly like her normal self and unless it gets bumped – she is not in any pain.

She doesn’t want to talk much about the surgery, or hear us talk about it. I am just praying for her to have peace and no fear as we get closer and closer to the date. She is fighting a bit of a cold, so would love prayers for that to pass quickly. I don’t think any of us can deal with pushing this out further. I don’t want surgery to happen, but it feels like it needs to, so I have surrendered to that and just want her on the path to recovery and health. I am so thankful that she hasn’t been sicker with this infection living inside her since October. God has truly protected her from so much already. Probably even things we don’t realize.

A friend is making a prayer calendar so that Finley will be covered in prayer every minute during surgery (once we know the time). If you would like to sign up to cover a time slot, please shoot me a message with your email. I know so many of you will be praying, but it will be so comforting to know that there won’t be a minute that she isn’t covered in protection, petition, and praise.

To him be the glory.

Prayer requests….

We had Finley’s pre-op appointments yesterday. Surgery is set for May 26th, still waiting on exact schedule. Surgery will take anywhere from 3 hours (best case) or 8+ hours.

It feels like God has led us here. We asked for him to make it absolutely clear whether or not she needed surgery, and the puss and granuloma came back. Even bigger than before. I think when they get in there we will find out why this has to happen. Why this is the BEST thing for her, even though we don’t understand, even though this is the most difficult path.

Here are the things we need cover in prayer.

  1. For Finley to have peace and freedom from any fear about any of this. (That would be good for all of us actually).
  2. That Finley will have enough diaphragm present now for a natural close and they won’t need to use her latissimus dorsi muscle.
  3. That they will be able to remove her spleen and colon/bowel easily from the patch, with no complications and no loss of organs.
  4. For wisdom and God to be guiding the hands and activities of everyone involved in Finley’s care. For God to put in place the exact right people to be in that room.
  5. That she will not have a post surgical infection. That they will able to eliminate all the infected material during the surgery.
  6. For God to protect Finley and that she would feel his presence through all of this.
  7. For Rowan as she is dealing with big emotions – help her process, open to up to us and others. That she would draw closer to God too.
  8. For God to be glorified through all of this.

I thank in him advance for the glorious work I know he will do in Finley. Look at how much he has already done.. how many prayers answered?

Her story is just beginning.