5 years old.


Finley just turned 5 years old on the 12th of this month. She is a force. She is so self confident and comfortable in her body. It is not unusual for people to meet her, have a lengthy conversation where she does a lot of talking, and they turn to me and comment about her personality.  The things she says, she shocks me at least once a day. She is such an old soul. God has BIG plans for this one, I can just feel it. She continues to astound. Her last X-Ray in January was clear and her repair is holding strong. She had her last ultrasound in the spring for the not-cholodochal cyst and to check for Wilm’s Tumor (both clear).  Both are now on a once a year schedule to check. At her well child she continues to actually go UP curves and is now in the 32% for weight and 50% for height. At 4 she was 25% and 25%, and at 2 she was 5% for weight and 25% for height. She usually runs or skips as her preferred speed of movement. I fall in love with her more and more every day.  She can be feisty and throws a tantrum with the best of them, but will usually yell at you to “leave her alone” so she can calm herself down. She starts Kindergarten in a few short weeks and though I am so excited for her and am so blown away that she is actually ready at 5, when faced with a HUGE list of all those things that “could happen” with CDH, but I will miss my alone time with her. She is developmentally completely on track and even advanced in some areas.  So many answered prayers. Don’t forget that my wonderful reader.  When I go back to the beginning of this blog and reread my prayers, and the prayers offered up by others I am brought to my knees with gratitude. 5 years ago today, Finley was trialing the conventional vent, and we were praying she would be strong enough for surgery. A few days earlier, a doctor had spoken to me, trying to prepare me that she might not make it. I didn’t hear those words. I just heard that there was a chance and I remember telling him, “there are so many people praying for her, all around the world.” I knew the gates of heaven were being shaken with petitions on her behalf. I don’t understand why some prayers are answered and some are not but I will never take for granted the truth that a miracle was performed for our family. We get to look upon a miracle every day.

If you are a newly diagnosed CDH family- have HOPE. I could never have dared to dream we’d be where we are today. But I had a mustard seed of faith…

Psalm 28:7 NIV

The LORD is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song.”

5 thoughts on “5 years old.”

  1. Liz,
    Finley is a doll! So many of the things you say of her remind me of Owen. Must be something in their trials as babes that creates these special souls that we are blessed with. Glad you have had so many answered prayers!

  2. What a wonderful update! THANK YOU so much for sharing what a bright star that Finley is 🙂 She is a miracle and an angel sent from God. May she continue to brighten the days of all who come into her world. Think of her often and always send up a prayer on her behalf! May God continue to bless your family!

    Janice P

  3. Congratulations to Finley on her 5th birthday! My little one is now 3, thank you very much because I started to read your blog when he was diagnosed and your story gave me hope.

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