Results…and relief.

It took longer than expected to get the results. On Monday I called and spoke with the nurse and she told me that the kidneys looked normal and the bile duct looked the same (still slightly larger than normal – but that is how it’s been now for 4 years -so stable is good). I felt ecstatic. She did mention she still needed to review the images with the doctor – but I didn’t expect to hear anything alarming.

Then after Finley’s birthday party I got an email. She mentioned they was something concerning with Finley’s intestines and an area that may have been collapsed. They wanted to take more images. It could have looked different due to her surgeries and wasn’t emergent – but something we could talk about on Wednesday when we had a doctors appointment. About 5 seconds after looking up what collapsed bowel was – I immediately emailed and requested getting the ultrasound the next day right before our doctors appointment.  Honestly, I felt sick to my stomach. Collapsed bowel could be evidence of a bowel obstruction. So of course I start thinking that maybe her every other day bowel movements are a sign of that and her bird-like eating.. and yes I was spinning myself up. And then I would stop myself and breathe and pray. I went for a run Wednesday morning to clear my head and listened to the Sunday sermon I had missed while we were out of town. Part that really resonated was about remembering what God has already done. As I think about that just in Finley’s life I am so reminded of his faithfulness. So I kept praying all morning long. I prayed for it to be nothing. If it was something – for God to heal her. For her not to require any surgery. 

After a long wait and tortuous ultrasound (the man kept telling Finley it shouldn’t hurt. But it did. Her whimpering and cries of pain just about broke my heart for the millionth time for her.) We went to clinic and met with Nurse Julie. She had to run back down to get the results – but she said it’s ok. Everything in the bowels looks normal. I almost sobbed with relief. The weight of the last week lifted significantly. I am so incredibly thankful that everything is normal… everything is truly AWESOME. 🙂 She won’t need to do MRI’s anymore either. They can check the bile duct (annually) and kidneys via ultrasound (mixed bag there since they cause her discomfort) every 6 months. No more general anesthesia. Counting my blessings and praising God. Thank you.

I would also ask for prayers for my Dad. He has HCC liver cancer and has been told he has about one year to live. We just pray for more time, quality of that time – and for my Mom and Dad to feel God’s presence and peace throughout this journey. On September 16th he has an appointment at OHSU to see if they will try Y90 on him – and our hope is that they will. Also prayers for my girls as they are processing that Opa is dying and that we find they right words to help them deal with this too. 

He is with you…

We are home. 

Those words feel very sweet. Finley’s X-Ray went quickly and though we haven’t heard the results, Dr Liz looked at it and after having seen many of her chest X-Rays (both with bowel and other organs up and not) and I felt like it looked good. The Radiologists asked what those clips were and I explained that she was born with CDH and see that healthy looking lung there? After her repair there was about half that there. I love seeing the amazement from medical professionals. Her X-rays look normal – except for those clips. That is so crazy to me. It reminds me the HUGE works God did in Finley’s body and just reaffirms her miracle status to me. 

We killed some time in the garden. Which is always such a flood of memories for me. I took a photo of this bench that I would sit at most mornings and pray during the time we couldn’t be in the NICU from 7-8am. So many prayers said in that spot. And then I think of others who have probably prayed there too.. When it’s hard for me. When worry tries to creep in, I think about all those answered prayers. How Finley truly is miraculous. 

Julie actually just called and her X-Ray did look perfect – Praise God! And her labs were good too and don’t show any abnormality in her kidneys. Just waiting on the MRI now. If her bile duct is still looking the same and stable, then we won’t have to do another MRI and we can switch to ultrasounds (and that will cover both her kidneys and bile duct). Can we get a Hallelujah? Be praying for that. 

During Finley’s MRI, I decided to go and give blood. I have wanted to do this for quite some time, but the timing kept not working out. I am not good at doing nothing and waiting. I need distraction or being in constant prayer. Finley got several bags of life saving blood product, so we know first hand, just how vital and important blood donation is. Today, my blood will help 3 people. If you can donate blood – do it. There is this saying from a sermon that I have probably mentioned before – it may be a mantra for me. What to do while waiting? Get busy doing good. Doing for others keeps the focus off yourself, and your worries and is something tangible you can do. Much more productive than worry. This resonates with me. I am a do-er. It is hardest for me when there is nothing I can do. The 2 people I encountered at the Red Cross were both believers, and I know that wasn’t a coincidence. Both times God reminded me to Trust him, and that he is always with me. 

So now we wait a little longer. But I think the MRI was the piece that was the scariest for me. I am very happy that is done. Thank you for the many prayers, messages, good thoughts. As always, we are so thankful for all of you holding us up.