Finley is 19 months old today. 19 months have passed since we were in the NICU and she was fighting for her life. Today, she is a normal, healthy, happy 19 month old. How can that be? How are we so amazingly blessed? I don’t know the answer to that question- but I know I do thank God each day for the blessings of both my daughters. I know I have probably written similar words already – but it bears repeating. Again and again.
I love watching the interactions between Finley and her sister. The unprovoked hugs and kisses. The cuddles on the couch as they watch a few minutes of TV together before Finley gets up to climb or jump off something. I love watching them begin to play together – the latest game is Rowan lays on the ground and has Finley climb on top of her and bounce like a bucking bronco. Of course there are also the loud screeches and screams as Rowan grabs a toy from Finley’s hands- because as you parents all know, the most attractive toy in the house, is always the toy in someone elses’ hand. Finley has started fighting back and holding on tighter and it will be ‘fun’ to see them learn to work out these battles amongst themselves. It brings me such joy watching them together and doing all the things I wondered if…. Just so thankful.
Finley is not afraid of much. Yesterday we were at a birthday party and she wanted to get into the bounce house filled with 6 and 7 year olds all jumping wildly. Something that would have had Rowan running in the opposite direction at this age. Finley wanted in. Insisted on going on. So I held my breath as she jumped with these larger kids all around her, hoping that no one landed on her… but she had a grand time and went back in multiple times. The fearlessness of the second child.
I think she is probably going to give me some grey hairs.
19 months. Only 5 months until she turns 2! That just seems crazy that time has passed so quickly. Supposedly, the greatest reherniation risks are those first 2 years, but it can happen anytime – as I have read of many other CDH’ers reherniating at 3 and 4. But I will not live in fear of this. If there is one thing God has taught me in this journey – it is to trust him. To have hope in him. To bring all things to him in prayer. I was looking back though Finley’s journal last night and once again amazed at how Finley was born with mild-moderate pulmonary hypertension on 8/12 and by 8/23 an echo showed severe PH – which by 8/30 had improved enough for surgery and by 9/13 it was minimal and by her 6 month follow-up it was gone. It gives me chills when I remember and praise God for how he has worked in Finley’s life. Both in her physically and how he has used her life to affect others. I hope her story continues to give other families hope. There is no power in fear. There is great power in hope.
Happy 19 month birthday lovebug!!
Romans 15:13 “May the God of hope fill you with all joy and peace as you trust in him so that you may overflow with hope by the power of the Holy Spirit.”
added 5:00pm – I forgot to add.. we are trialing Finley off Prilosec this week – pray that she doesn’t have any reflux issues and will finally be off ALL meds!!