On Friday, Finley had her 15 month well-child appointment. She is up to 20lbs 7.5 ounces – 10th percentile, but Dr S is not worried. With the increase in activity, and not an increase in appetite, this often happens but usually they catch back up in a few more months. It’s interesting because if you look at her, she doesn’t seem like a super skinny baby. She has chubby cheeks, a tummy, and some fat rolls. I may have to throw a party when we finally hit 21 pounds. I will continue to try to fatten her up with good fats, and not stress too much about it. Early Intervention also came last week and she is right on track in all areas.
She has been taking a few steps for the last few weeks but not walking consistently. The most we had seen was about 4 steps and then last night at Jon’s birthday dinner at Swagat (our favorite Indian restaurant in Beaverton) she decides to show off for the table and walked the length of the table (maybe 20+ steps), pausing only to applaud her self (and let the table clap for her) and continue along. It was the cutest thing and just made my heart sing. As I see her meeting milestones and not being delayed at all, I am once again, humbled and filled with gratitude for where Finley is at.
A news Anchor in NY had a baby with CDH and is sharing her story – Amazing Grace. Love seeing awareness being spread!
Giddy is the word that best describes how I have been feeling since I got the call on Tuesday that Finley would not be needing immediate surgery. Giddy. Euphoric. Joyous. I have just held Finley in my arms and gazed into her sweet face and cried happy tears and yelled THANK YOU to God more than once. What an amazing answer to prayer.
The results were inconclusive. Her common bile duct is slightly larger than normal, but not as large as it should be to clearly be a choledochal cyst. So they are just going to continue to watch it. The Nurse said that probably wasn’t entirely the news I was hoping for and I said – it was perfect. I can wait forever if it means Finley doesn’t have to have another surgery. God is revealing himself in the waiting.
Thank you for praying for Finley… we are so blessed by your prayers and I hope you are as blown away as I am by the fruit of those prayers. Wow. Giddy.
Thank you LORD!! We are still in a “gray zone” with her potential choledochal cyst – but it is not showing classic representation and is not as large as they usually are- which means they will continue to follow it. They just aren’t sure one way or the other what is going on with her CBD. It is larger than normal – but not large enough to classify as a CC. I am happy to stay in a waiting, grey zone if it means no surgery for Miss Finley right now.
Next ultrasound in 6 months – another MRCP in 1 year. Yes, that means no surgery this winter as previously mentioned!!! I am soooo thankful and happy right now. Thank you for ALL your prayers.