Other than a couple of episodes of reactive PH, Finley has had a relatively stable 24 hours. She is still telling us she is not ready for more vent weaning – and really did not like being turned to her right side (probably because of the pressure on her good lung), but she is holding her numbers. The Lasix did it’s job and she has peed off a lot of the fluid and that does seem to have made a small improvement, but Finley just really wants to take her time and go slowly. So I am holding on to the positive things and praying unceasingly and boldly.
Thank you so much for the texts, facebook messages, and blog messages – they really do uplift us and encourage.
God sent someone to me last night. This gentleman from the Family Advisory Board, Dan Zike, who came to tell me about some things that they do for families of NICU babies and I was so struck by his story. They were diagnosed with a very rare condition (CCAM) at the 19 week ultrasound and were told that the baby had only a 1% chance of survival and they should terminate. That was not an option for them, so they continued with the pregnancy. They went down to explore a radical surgery at UCSF and met Dr Lee, but ultimately decided to deliver at Emanuel and selected Dr Bliss as their surgeon. After a long journey, today their son is a healthy, happy 2 year old (http://www.caringbridge.org/visit/noahzike). Because of their experience in the NICU, they have felt led to help and support other families in the NICU. God using their experience for his glory and to help others. After talking with Dan, I just felt like God sent him to me to hear his story, see the example of his walk of faith and felt God’s reassurance. Dan shared the verse that carried them through;
“Be still and know that I am God” Psalms 46:10