29 weeks

29 weeks

So pretty good news from the ultrasound. Or rather, I’m taking no bad news as good news! Things are still looking the same – no hydrops and amniotic fluid levels are normal. Right lung is visible and if I heard him correctly about 50% growth (compared to a normal baby at this time). The LHR which “doesn’t matter” is still in the 1.2-1.34 range.  The left lung is anybody’s guess since they can’t distinguish between bowel and lung. Let’s just keep praying that she will surprise everybody and have a well-developed left lung! They estimate that she is about 3 pounds right now – which means she should be another big baby like Ro. We met with the neonatalogist and he was very nice. He told us exactly what to expect from the moment Finley is delivered. Once again, can I say how surreal this is? We had decided to use Rhonda Davis as our Doula again, and I know I am so going to need her especially in those hours after delivery when Finley and Jon will go into another room and I am left behind to worry and wait.  Basically, as soon as the cord is cut Finley will be taken into the NICU where they will ventilate her and do all the things they need to do. Jon will  go with them.  I won’t see her until the doctors are all done with me and she is ready which sounds like it will be about 2 hours. We won’t get to hold her until after her surgery – but we will be able to lay a hand  on her (as long as she tolerate that – sometimes with the pulmonary hypertension you have to leave them alone for while).  Rowan will be able to go into the NICU and see her – we can have one visitor at a time with us in the NICU.

I will be touring Emanuel soon and also will be getting a tour of the NICU from one of the NW Newborn Specialists Doctors. There is the planner part of me that is happy to have these things to hold onto and “prepare myself” but then there is also this other part of me that has a hard time really thinking about the birth and the sudden reality of all these weeks of worry finally coming to a critical mass. Part of me really would like her just to stay put. Really thinking about the day she is born and those days thereafter really starts to stress me out.  The “one day at a time” adage is really all I can deal with.

What to pray for;
– A miraculous healing! (a girl can dream)
-Baring that, that Finley’s lungs develop as much as possible and that she has enough lung function to support breathing after birth (without ECMO).
-No more complications before the birth and that I don’t deliver until 39/40 weeks.
-That Finley stabilizes quickly and that they can do the surgery a few days after birth.
– That Finley will be strong and survive (and thrive)!
-For strength and  peace for Jon and I.

My verse for the week: Psalm 34:3 “I sought the LORD and he answered me and delivered me from all my fears.”

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4 thoughts on “29 weeks”

  1. Alicia & I are continuing to keep you all in our prayers and are glad to hear Finley is doing well. We hope the next 10 or so weeks are smooth sailing. I had both Alicia & her sister in the summer heat so I hope you have A/C!

    Wishing you peace & comfort.

    Shelly & Alicia (Grandma & Mom to CDH angel Jayden G.)
    Beaverton

  2. FWIW, we had a great experience delivering Zane (as a VBAC) at Emanuel. My doctor insisted we deliver there in case we needed the NICU or any “unusual” treatment. Although the recovery room was smaller than at Providence, the food was better! 😀 It’s the little things, right? Cheers – Natasha

  3. Hi Liz,
    Thanks for leaving a comment on my blog. Reading yours reminds me so much of those first weeks after we were diagnosed.
    Legacy is wonderful. Since we were diagnosed “late” at 33 weeks, it never occurred to me to look in to going anywhere else. I am so thankful that we were able to go there and have Dr. Bliss as Owen’s doctor. He truly is amazing. When we had our last appointment with him I actually cried (unlike the first time when it was out of fear). He just means so much to me.
    I will keep you and your family in my prayers, especially for sweet Finley!
    darcy

  4. Liz,
    My thoughts and prayers are with you and your family. I hope your miracle wishes come true and Finely is strong!

    Heather (Alex’s mom)

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