Per my weekly BabyCenter email for 24 weeks “Your baby’s growing steadily, having gained about 4 ounces since last week. That puts him at just over a pound. Since he’s almost a foot long (picture an ear of corn), he cuts a pretty lean figure at this point, but his body is filling out proportionally and he’ll soon start to plump up. His brain is also growing quickly now, and his taste buds are continuing to develop. His lungs are developing “branches” of the respiratory “tree” as well as cells that produce surfactant, a substance that will help his air sacs inflate once he hits the outside world. His skin is still thin and translucent, but that will start to change soon.”
Knowing that there is a lot of brain and lung growth going on now just makes my prayer even more desperate that Finley’s lungs and brain will continue to grow in a manner that her ratio stays in the “optimal” zone for survival. It is so unreal to me sometimes that a month a go my biggest concern was which room I would put the baby in whether it was a boy or a girl and now I am praying these very specific prayers (multiple times a day) for her lungs/brain to grow and for her liver to stay out of her chest cavity. I know we have gotten some very good news so far – but I am cautious about getting too excited since I know her ratio can keep changing but I am hopeful that God’s plan for Finley is for her to survive this and be an example of God’s miraculous power. Rowan kisses my stomach and sings to her sister and says “I love you, baby” and my heart aches for them to be together. Next week will be a big week for us with lots of doctors appointments and lots of information. I pray that God will give us even more hope and peace for what direction to take.
As we have started on this journey it has been interesting to learn that CDH is as common as Spinal Bifada and Cystic Fibrosis, but not as well-known, or funded. Please join the Facebook CHERUBS group as they try to increase awareness and gov funding so that maybe in the future they will know why this happens and be able to save more babies. Thanks for walking along us on this journey – as always your prayers and support mean so much to us.
This is my hearts prayer as well – Philipians 4: 4-7
4Rejoice in the Lord always. I will say it again: Rejoice! 5Let your gentleness be evident to all. The Lord is near. 6Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. 7And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
Already got a call back from the intake Nurse at UCSF and they have us scheduled for May 7th for 5-6 hours of consultations/appointments and tests. Now just need to make Rowan arrangements (thank you so much Mom!) and get flights and accomodations settled. I thought it would take much longer to get an appointment. So that week will be a busy week for us. We have our consultation with Dr Newman on the 4th, Ultrasound and Dr Apt with our perinatologist on the 5th and then off to San Francisco on the 6-8th. Atleast after that week, we will be able to make decisions about where to deliver and who will be handling Finley’s care.
We went back for our first ultrasound and Dr’s appointment since getting the news that Finley has CDH. I was very emotional during the ultrasound – there are just so many emotions to process right now. It’s overwhelming at times. The great news is that the lung/head ratio has gone from a 1 to a 1.37 which is REALLY good.
We went back for our first ultrasound and Dr’s appointment since getting the news that Finley has CDH. I was very emotional during the ultrasound – there are just so many emotions to process right now. It’s overwhelming at times. The great news is that the lung/head ratio has gone from a 1 to a 1.37 which is REALLY good. The higher the ratio, the better outcome usually. It is also dependent on which organs are in the chest cavity as well- in our case if it continues to be just the stomach and part of the intestines that puts us in a much better place. Having the liver migrate up there is very bad – so we will continue to pray that God keeps her liver where it is. Her heartbeat was really strong and she is looking good otherwise. We spoke to the Doctor more about making the decision about the pediatric surgeon – we have two people to consider locally – Dr Newman or Dr Bliss delivering at Emanuel; or we could possibly go down to UCSF because they do see the majority of these cases on the west coast. We are going to explore to see if it makes sense to deliver down there – if the medical care would be better for Finley. Our perinatologist seems to think that Emanuel is well equipped to handle our case and since we are not a more dire case (which would mean lower ratio, liver up, right-sided CDH) UCSF may not be necessary. Please pray that God guides us to the right hospital/surgeon and that we have a peace in our decision.
I am so thankful for all the support and prayers up to this point. I know that I couldn’t function without it. I truly feel God’s comfort and support through this. I have my moments of fear and worry – but overall I am so amazed that I am functioning as well as I am – and I know that is ALL God.
I keep thinking about this verse and it gives me comfort;
2 Corinthians 12:9-10 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.