Wanted to share this video that shares some of the interesting research and potential treatments for CDH in the future.. CHERUBS was able to give this donation due to the Vivint contest – so thank you to all of you that voted!!
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I had my blood drawn yesterday and just shipped it out this morning for this CDH study. I hope that I can help in some way to provide any information to help with this horrible defect that took the life of my son, Aiden and so many other babies.
I am so sorry for your loss Leslie!! We participated in the DHREAMS study when Finley was born.. I too just hope and pray that they figure out this defect and are able to help babies in the future. HUGS.